5.27.2010

crazy life

that's what this is.. just one big- fat- crazy- life.

i've been MIA for the last few weeks just sort of dealing with some things... i was so stressed out last weekend that i had a twitch in my eye. (laugh it up- go ahead- but it's stinkin' annoying! :)

the loss of justice hit really close to home for us. even though i didn't know his mom well she was on a few of the message boards i frequent... making it more shocking than if we were complete strangers. and, knowing that justice was born at 27 weeks... bpd kid... so many similarities to wren... he just got sick more. that could be us... that could easily be us.  and then this past week another sweet angel got her wings. born at 26 weeks, weighing only 8.5oz... breathe easily sweet evelyn....

i'd like to give prematurity a swift kick to the shin and a throatpunch. this.just.sucks. i'm reminded how blessed we've been... we've had things so easy compared to some. i suppose this life is all about perspective isn't it?


ok... enough depressing prematurity hating for now. here are some other things we've got on our plate:

5.21.2010


those of you who know me from facebook or message boards have probably already heard... a sweet little boy got his wings yesterday. 

when i was thinking about what to write... what could i say?  the survivor's guilt... the heartbreak for that family.... the terror that i went to wal-mart yesterday and didn't bring the shopping cart cover? things like this hit so close to home and are a wake up call for all of us preemie parents. we can't let ourselves "just not worry about it", we can't live by the "it's good for their immune systems" mantra (which i would normally wholeheartedly embrace), every single exposure to illness could lead to an infection that could claim the life of our little one. i know people think we're overprotective... germaphobes, crazy parents, but this is the reality we live in every day.

thadd and i have both shed tears over justice, his life, his fight, and his departure from this world... we can't even imagine what the blakey family is going through right now. i think my friend over at [fertile hope] says it best, so i'll just quote her:

Prematurity claimed another victim today
Justice was a 27 weeker with chronic lung disease who fought through a terrifying case of RSV this past winter. He recently contracted a lung infection and the combination of those things overwhelmed him today. He was a fighter through and through, and battled long and hard. But he was 20 months old and had endured more than many people do in a lifetime. 
Tonight he breathes freely and rests peacefully amongst the angels. Please give the family your thoughts, prayers and condolences. 
And hug your children a little closer tonight. I know I am.
-Trish

thanks trish, for putting it so beautifully. 

please remember this family in your thoughts and prayers. if you're interested in donating to the family please let me know and i will send you the link. 

5.18.2010

early intervention evaluation

[here] is the original post on early intervention... a little about the oklahoma ei program.
[here] is the post telling about how she did on the tests, and that she didn't qualify for ei.


these are some of the things they tested her

alicia graduates and we take pictures

because she's actually that cute.....




happy as a clam!

that girl is always interested in food!


thadd and grandma donaghey

alicia and miranda- the graduates
wren and her papa


wren and her grandma

5.11.2010

post it note tuesday




it's time for post it note tuesday folks.... saying what you want, in as few words as possible. (as you can imagine, this is rather trying for me.)