Showing posts with label preemie mom faith. Show all posts
Showing posts with label preemie mom faith. Show all posts

4.13.2010

rare disease day 2010

was actually on february 28th.... so this post is a little late... but i wanted to talk about a few diseases that have affected people that i've grown to respect and admire. this is the first of at least two posts on rare diseases.
and, of course, to be a little self-centered... i have APS.. which was on an episode of house once. that makes it really cool- right?
through a friend in hawaii i learned of the cary family. here's their blog. and charming sweet boy ridge:

ridge has multifocal lymphangioendotheliomatosis with thrombocytopenia. yes...