Showing posts with label coping with nicu. Show all posts
Showing posts with label coping with nicu. Show all posts

2.12.2010

so, we may go a little nuts

about having a preemie...
losing our full term pregnancy and...
losing our "ideal delivery"...
spending too many hours in the nicu...
not spending enough hours in the nicu...
leaving the hospital without our babies...
holding our babies for the first time...
all the acronyms you can imagine, and some you can't: C/S, IVH, PDA, NEC, ROP...
the privilege of changing diapers...
caring for our baby...
about germs in general...
the wonderment of a baby nipple feeding...
pumping all the time...
our babies' isolette linens matching...
finding preemie clothes that make us feel like we have "real" babies...
having a baby shower- at all...
finding the perfect carseatstrollercribrockingchairnursingpillowfillintheblank...
taking our babies home...
not having a monitor to tell if they're ok...
not hearing beeping for the first time in months as we watch them sleep...
hand sanitizer...
your "allergy cough"...
your runny nose...
about germs in general...
cigarette smoke...
anyone under 5 feet tall being within 5 feet...
strangers wanting to touch our sweet babies...
about germs in general...
our babies gaining weight...
our babies' matching clothes...
taking pictures...
the march of dimes...
termie moms complaining...
doctors' appointments...
insurance bills...
showing the nicu we appreciate them...
reading everything we can...
message boards and blogs...
experiencing parenthood...
trying to connect with other people in our situation...
adjusted age...
developmental issues...
about germs in general...
future pregnancies...
future everything...

about cherishing every single moment.

and all of this is completely normal.

for friends and family, please just give preemie parents a crazypass. we deal with many things that termie parents can't imagine. we carry worry, guilt, doubt, fear and a sense of being overwhelmed with us almost every hour of every day.

9.13.2005

new to the nicu



for the parents
how do i connect with my baby?
dealing with guilt and grief
my initial reaction to my emergency c-section, and my baby in the nicu
a little about ROP
reflux- it will become an unwelcome guest
adjusted age vs. actual and development
pictures you'll want to take
vaccination?
why do people have preemies?
RSV season
preemie parents are a whole new breed of crazy


post nicu- how to parent a preemie
adjusted age vs. actual and development
what is early intervention?
choosing a daycare for your preemie
soon.....
coming home- what do i need?
traveling with baby
will i need monitors/will i ever escape the beeping?!
synagis- getting approved, side effects, and is it worth it?
can my preemie sleep through the night?


for the mommies- milk and more

pumping
breastfeeding tips
reglan experience
getting mirena/getting rid of mirena
dealing with guilt and grief
coming soon...
domperidone- worth the hassle?
i've tried everything!
cow vs. goat
fortifiers
can my period affect my milk?
should i use rice cereal?


advice from nicu nurses
how to survive a stay in the nicu

advice from preemie parents 
what i would tell my pre-preemie self


rare diseases
MLT


resources